Archive for the Category »autism «

Anti-psychotic meds for an 8 year old?

100_1531I took Nove to the doctor yesterday after months of discussion and worry. We talked to the doctor about having her start on anti-anxiety meds. She’s only 8 but has strong anxiety about everything. I assume it is  part of her autism. There may be some ADD also, but we have to start with one thing here.

Anyway, the medicine is an anti-psychotic (sounds lovely, huh) and while there is risk with any medicine given, if it helps her not worry about everything (I’m not exaggerating) , then it’s okay.

Of course I’m worried about it.

 It took me a very long time to do this and I hate pills or drugs, so it wasn’t done lightly. We talked with our therapist who has a son with autism and now that I think back, it might have been him who brought up the idea last year.

For anyone who wants to tell me what to do, I say, YOU come  live my life and see how well you deal with it. No, no, I’m kidding. That would probably just incite even more anxiety for Nove since she doesn’t know you.

I have some kind of anxiety myself. What am I doing to my children? They both are on drugs! But, I have to remind myself that it isn’t just me dealing with her behaviors, or lack of behavior. The school sees it, and her dad sees it on weekends and even my boyfriend’s sister who took Nove to the zoo saw it. Apparently Nove couldn’t go through a cave on her own, but they couldn’t turn back because there were too many people behind them.

So, we’ll try this for a while. Keeping close watch over her for added symptoms or bad behaviors exagerated.

Keep your fingers crossed for me, will you?

She just wasn’t home

100_1560100_1559last night was Nove’s 2nd grade Christmas concert. This is the 3rd year she’s performed with her class on stage with the lights, the audience, the noise. She’s typically done okay in this situation, meaning no melt downs or over anxiety.

 

 

 

 

On the way in, she was happy to be there, if a little worried that we were late. We were not late, and after 3 seconds of panic when she thought she heard her class mates on stage, she walked into the band room and saw them all. Instant calm.  She sat where her teacher said to sit. Then another teacher gathered her and some classmates for a photo opp.

 

100_1561 Not that they wanted their pictures taken.

So, I told her I loved her, and have a good time. Then I went to sit with my older daughter and my mom in the auditorium.

100_1562

We thought we’d sit on the front row so Nove could see us, but we couldn’t see past the row of flowers! So, we moved up, and then across the way, and then up one more time. However, it was perfect because when the kids came out, we were directly across from Nove who saw us and waved.

100_1565

That’s her inside the circle.

Here’s the sad part. last year at her concert, she was engaged in the process. She sang, she did the actions, and she was “on”. But, like her first year on stage, this year no one was home. Actually, she was visiting somewhere else……

For the almost 20 minutes on stage, she was sliding her butt and back along the railing and looking to the left. I found out her crush was on the left side of the stage and she kept looking to see what he was doing. I can’t blame her, he has great hair! She’s the one in purple, top row, looking to the left in most of the pictures below.

100_1567100_1569100_1571100_1573

When she wasn’t looking at him, she was looking up at the ceiling or at nothing at all. She barely sang, and barely did any of the actions.

100_1575

And this, my friends, is what it’s like living with her too. We never know how much she’ll be involved, how engaged, or how much “in her head” she’ll be.

Today wasnt so bad

I still had to pretty much drag Nove out of bed, but at least it wasn’t a fight. She was being very clingy so she had to hug me as I tried to walk us into the living room.

Then, she wanted help (no, she wanted me to do it all!) with getting dressed. But, she allowed me to dress her and wanted to cuddle before we had to leave. She even let me out of her sight for a while so I could get dressed and go warm up the car.

When she got off the bus she was being her typical not – so – verbal 2nd grade self though. She refused verbally and physically to let me zip her coat andlet me tell you, it was 2 degrees from freezing. The kind of cold where it’s nearly 10 degrees colder in the shade and in the wind. But she did not even notice. This is typical for her also.

However, I got myself a nice new short coat today and I was toasty except where my nose stuck out. For the record, I haven’t had a new warm coat in years. The one I’ve been wearing is about 2 sizes too big and is a heavy cotton canvas barn style coat. Because it is big, the cold rushes in around the hands and neck so it never kept me very warm, despite being a really nice jacket.

Anyway, back to the story……….

Wednesdays, she has a drum group after school through her case management system. Her driver came a little late and Nove wasn’t sure she wanted to go, but Zeta and I convinced her. Again, I had to put her shoes on. (this girl KNOWS how and CAN dress herself)

She had a good time, got along with the other boys in the van and did well at group according to Zeta, upon her arrival home. She even told me that her class went to the high school today to practice for their Christmas concert which is tomorrow night.

But, she wouldn’t tell me anything about anything directly after school. That’s so typical of her.

Fighting to go to school

So, today wasn’t much different than yesterday in that Nove didn’t want to go back to school.  But, I was able to fight her, and it IS a fight.

I had to physically drag her out of her bed. (no amount of bribery, or threats got her out of bed. She tucked arms and legs under her body so I couldn’t get a hand hold) Then when she scrambled into mine, I had to drag her off it too. The  problem is that she’s gotten pretty big and my arm and shoulder are really screwed up. So, I dropped her close to the edge of my bed and she fell to the floor. (now don’t cringe, it’s carpeted and my bed is low to the ground) However, she landed funny, half on her face and kinda flipped over.

This made her angry and it probably hurt, so she lashed out at me, then at her gramma when she tried to help.

Now, before you get all judgmental – I asked her nicely, I said “lets go watch tv for a while” ” do you want some breakfast?” and a lot of other niceties, but to no avail. Then I had to start with threats ” those books you chose last night? I can’t get them for you if you don’t get up and go to school without a fight. ” “That was our agreement!” Nothing made a difference.

Can you understand why I don’t fight everyday? I really just want to cry, hide in bed and cry. If this is autism (including anxiety, ocd, oppositional defiance) then I don’t want it. (not that anyone does)

So, after feeling guilty for not pushing her into school yesterday, or last week before the holiday break, today I feel even worse for having to force her physically to school. I know the difference, my older daughter isn’t like this, never was like this.

I’m going to go hide under the covers and give in to the hole in my chest right now. The dark, dark hole.

 

This will be a chronical of my child’s issues with school – Is it hard work, social discomfort, or something else?

Category: autism, parenting  4 Comments

Refusal of school 11/30/09

Nove doesn’t want to go to school today. She started last night at bed time working herself up over not wanting to go to school today.

She had a break from school, 5 days including the one last week that she chose not to go.  Her birthday was Friday and she turned 8 years old. She won’t or can’t state what it is exactly about school that she doesn’t want to face.

It still could be that she doesn’t feel well, but she went through a period of time where getting up and going to school was not hard or traumatic.  

 

 

This will be a chronical of my child’s issues with school – Is it hard work, social discomfort, or something else?

Category: autism  Leave a Comment

smartknitkids seamless sock review

I don’t have sensory issues per say, but my mom does.

My younger daughter does

 I just hate socks!

That being said, I may have found some that I really like!

Smartknitkids makes a line of seamless socks for kids (and adults) that don’t bind or rub and are generally easy to wear for those with extreme sensitivity to clothing on their skin.


Jenn: I wore two pair of the kids socks, even though I’m not a kid anymore. (I can act like it with the best of them though) My shoe size is a 6.5 in sandals or flip flops and about a 7 in closed toe and heel shoes. I wore the kids XL.

   The first day I wore the black pair with my high heel boots. Let me explain why I did this….. Often, when I wear the heeled boots, the socks or hose will either slip down over my heal and bunch up, or will pull up on my toes and cause a lot of pain to my toe nails. (eww gross feet)  Anyway, neither of these things happened when I was wearing the smartknit kids socks and I was in them for at least 9 hours, if not 10 or 11.

  The second day, I wore the bright pink XL with my tennis shoes to work. I have the same problems sometimes as with the boots, where the socks will slip down over my heel and bunch up under my arch, but again, no slippage with these socks.

 I stand quite a bit, and walk back and forth a lot at work, on concrete floors. So, comfort and cusion is pretty important to me no matter what the shoe is. When I wear my athletic shoes though, I often sweat (here we go again with gross feet stuff), but my feet were fresh even after 9 hours later. No sweat, no rolling, no bunching, no binding.  


Company Information:

Knit-Rite was contacted to create a truly seamless sock for children with SPD in 2003.  Knit-Rite began to create a 100% seamless sock that is comfortable for children.  The result was SmartKnitKIDS.  The socks are knitted like a caterpillar spins its cocoon by starting at the toe and knitting up toward the ankle. This process does not leave a seam and provides a super comfortable socks for little feet.  Knit-Rite also tried to eliminate wrinkles and bunches in the socks to make them even more comfortable by choosing a super stretchy fiber so the socks are form fitting, snug and comfortable.  To make the socks even better for kids, Knit-Rite chose a no heal design which allows the sock to be put any which way. Now available in many colors and sizes for kids and adults. 

  “Our goal is to provide a product that helps children. We are proud to have created a product that makes mornings easier for children and parents.  We are trying to spread the word about these great sock so more children who hate seams, wrinkles, lumps and bumps can be helped and find a solution.  “  Rose Pener


Nove: Since She’s not speaking much today, I’ll share what I saw when she put these on. She wore the purple pair in a Medium and they matched her shirt almost exactly which I thought was funny and ironic.

Unlike many autistic kids, Nove doesn’t seem bothered by clothing in a lot of ways. She seems to almost not even be aware of what she is wearing, but I’ve seen her often remove socks because they slide around or slip over her heel (like her mama) because she has long, narrow feet.

   So, I was hopeful after having tried these that she would be successful too. She was!

 Not only was it a warm day (flip flop weather), but she changed clothes at least once after putting them on. I think the fact that these have light compression (general all over snugness) helps them to stay in place. Not once did I see her mess with them or attempt to remove them. Even when changing her pants, she left them on. Usually the socks come off with the pants, in her case.


Sherry: My mom has some pretty strong (severe) sensory issues. She can’t stand scents (like candles, perfume, cleaners) and her clothing must be of a certain type. So, she tried the adult size smartknitkids socks which were a little bit too wide for my short, narrow feet. (Hers are very wide and a little longer) I noticed today that she had them on again for a second day, so she must have found them to be fine.  

 When I asked her, she said they were……… fine. She is short on words some days, just like November. But, the fact that she had them on again and that they were not relegated to the kitchen table with the rest of the socks and information from the company, said a lot to me.

*update* Sherry added today that even after she washed them and wore them again, they hadn’t lost the elasticity and felt really good, but she might need the next larger pair because she tought they cramped her toes a little.


So, overall, I think these socks are winners! 

  By the way, they also make pantyhose. All these products are good for diabetics who need compression for circulation issues. Maybe that was why my feet didn’t hurt as early in the day? I don’t have diabetes, but I do have crappy circulation. 

  So, the great people at SmartKnitKids are offering a 10% off coupon code to everyone who reads this post and wants to try these socks out. Just go to http://www.therawear.com/kids_socks.html

Use coupon code kids10


A little more information: The kids style socks, are not molded into a shape with a heel. They are more like a tube sock, but without a toe seem. I was worried when I first put them on that the upper edge would be shorter in the back than in the front, but it came out even. Magic, I tell you! (probably has to do with the stretch going where it needs to and other scientific stuff)  

I was also concerned about the top edges of the socks. It isn’t stretchy like the rest of the sock body, but it did fine too. It did roll slightly. Just barely.

 Not anything that affected the sock staying up or in place. In fact, I don’t believe the sock moved unless I made it.

  The adult version was molded. It had a heel and clearly defined area for the foot which is probably why it felt a little too big on my little ol foot. But it wasn’t bad. Don’t take that impression from what I said, please! I could have worn the socks, but figured I’d pass them on to Sherry (my mama) so we could get even more feedback!